Originating from a humble Facebook group, we have evolved into an organization with a presence in every U.S. state and territory, representing diverse sub-communities from pediatrics to BIPOC, LGBTQ+, caregivers, and more. Our mission is to advance the understanding of Long COVID and its associated conditions, and expedite solutions and assistance to Longhaulers and their families through advocacy, education, research, and support.
Your support is crucial. By partnering with us, donating, volunteering, or simply amplifying our message, you help us move the needle significantly. Each contribution empowers us to educate more clinicians and researchers, develop resources, enhance support services, and push for critical legislation and funding that can change lives. As we continue to grow and tackle the challenges of Long COVID, including mitigating future pandemics, your involvement enables us to maintain a robust dialogue with stakeholders and ensures that the Long COVID community's voice is heard and acted upon.
We depend on your support not just to sustain our efforts but to amplify them. To learn more about how you can make a difference or to join our mission, please visit our website or contact us at Contact@Longhauler-Advocacy.org. Together, we can forge paths to recovery and resilience for millions affected by Long COVID across the nation and beyond.
How You Can Help Amplify and Support Our Work
Partner With Us
-
Public Awareness & Education Efforts
-
Stakeholder Awareness & Education Efforts
-
Clinician & Researcher Education & Awareness
-
Development of Resources for the Long COVID Community
-
Research Development, Involvement, Recruitment, & Dissemination
-
Enhancing Support Services
-
Getting Connected to the Community
-
Long COVID Models of Care and Care Coordination
-
Elevating Long COVID Legislation
-
Obtaining Long COVID Funding
-
Learning about Long COVID, its associated conditions, and Infection-Associated Chronic Conditions
-
Learning How to Best Serve the Long COVID Community
-
COVID-19 & Future Pandemic Mitigation Measures
-
Speaking engagements, presentations, conferences, booths
-
Consulting and advising
-
Development and facilitation of webinars and/ or conferences
Ways to Support Our Work & Mission
As the COVID-19 Longhauler Advocacy Project (C19LAP), a grassroots, patient-led 501(c)(3) nonprofit, we stand at the forefront of combating Long COVID and its sweeping effects on our community.
Donate
Support the mission of C19LAP here:
Donate by Check:
COVID-19 Longhauler Advocacy Project, Inc.
P.O. Box 305
7491 N Federal Hwy C5
Boca Raton, FL, 33487
Employer Matching
Employer matching gift programs are a form of philanthropy in which companies financially match donations that their employees make to nonprofit organizations. When an employee makes a donation, they can request a matching gift from their employer, who then makes their own donation to the same nonprofit, effectively doubling the contribution. Here are the typical steps involved in obtaining employer matching for nonprofits or charities:
-
Check Eligibility: Employees should first check if their company has a matching gift program and confirm the nonprofit's eligibility under their employer’s guidelines.
-
Make a Donation: The employee donates to the nonprofit organization of their choice.
-
Obtain a Matching Gift Form: This can usually be done through the company’s human resources or corporate social responsibility department. Some companies also have online portals where forms can be filled out.
-
Submit the Form: The employee submits the matching gift form, which may be a paper form or an electronic submission, to their employer along with proof of their donation.
-
Employer Verification: The employer verifies the donation with the nonprofit, ensuring it matches their criteria for matching gifts.
-
Employer Makes the Matching Donation: Once verified, the company makes its own donation to the nonprofit, matching the employee's original contribution according to the company's specified match ratio (often 1:1, but sometimes more).
-
Nonprofit Acknowledgement: The nonprofit typically acknowledges receipt of both the original donation and the matching gift, providing official receipts for tax purposes.
Fundraising and Sponsorship
-
FB Birthday Fundraisers
-
Submit a fundraising idea or request to lead a fundraising effort for C19LAP.
-
Become a Sponsor
Informal Ways to Support C19LAP
-
Share educational materials
-
Get Long COVID Apparel and Merch
-
Share Infographics & materials from our website
-
Follow & uplift our social media posts
-
Subscribe to our website (free)
-
Connect us with other stakeholders
-
Share materials with your clinicians or researchers
-
Get in the media and reach the public
-
-
Participate in Actions - “Nothing About Us, Without Us.”
-
Contacting Congress and other Government Officials
-
Sign on Letters
-
Registration for Events, Webinars, and other Activities
-
Share Our Social Media Posts Far and Wide
-
Share Your Story Every Opportunity You Get
-
-
Contribute to Resources
-
Add a Long COVID Competent Provider to the list.
-
Flag or request removal of a provider listed on the Long COVID Competent Providers List.
-
-
Add a Long COVID Care Center to the List
-
Flag, or let us know a Post COVID Care Center has Closed
-
-
Submit media pieces you have been included in, or that mention C19LAP
-
Have a fundraising connection or idea? Submit them here.
-